Accord Aims To Create Trove Of Genetic Data by Gina Kolata. The New York Times. June 5, 2013.
International Partners Describe Global Alliance To Enable Secure Sharing Of Genomic and Clinical Data. Broad Institute. June 4, 2013.
Read the above articles and take the following quiz to see how much you recall.
(1) Often now databased on genetic variations and health are only open to ___________.
(2) The fear motivating this agreement is that as millions of people get ________ that the data will be hopelessly _________ and impede ______________.
(3) To deal with this fear the agreement seeks to _____________ the data.
(4) True or False: There are now clear and agreed-upon standards for representing and sharing genetic data.
(5) How does lack of standards for sharing impact cancer research?
(6) Since cancers are so _________________, a particular mutation will be ___________ requiring examination of data from hundreds of thousands of patients.
(7) How was a study of whether HDL actually protected people against heart disease was hampered by lack of shared databases?
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